These are some of my favorite blogs, all of which I have followed at one time or another.
They include chronic illness blogs that focus on specific diseases, some that talk about trauma, as well as a few not related to chronic illness or trauma at all.
I like these because they provide a quality of information that I find engaging, nonjudgmental (including of their own experiences and symptoms), insightful and oriented towards learning, growth and sharing. Some are not very active or no longer active but still provide a wealth of information in their archives. All of these offer support in one way or another.
Academia: The Professor is In
Adverse Babyhood Experiences (ABEs): see Association for Pre and Perinatal Psychology and Health (APPPAH)
Adverse Childhood Experiences News Site: ACEs too High
ANS Rewire: Supporting the Nervous System for Recovery (Dan healed from ME/CFS)
Attachment trauma and its lifelong effects on health, parenting, children and beyond:
Podcasting at One Broken Mom
Blogging at Amee Quiriconi
Podcast about How to Find a Therapist
Caregivers of partners who are survivors of trauma: Heather Tuba
Chronic Illness, Buddhist Perspectives: Turning Straw into Gold
Chronic Illness, Tips & Support: Chronic Babe (Jenni Prokopy now Jenni Grover)
Offers Videos, Education and Chronic Illness Support Formats
Family Doctor’s Blog: Musings of a Distractible Mind
Fun, Tips & Blogging: Yes and Yes
Inflammatory Bowel Disease (IBD): Casey at Light Your Sparkle
Mothering: Enjoying the Small Things (Kelle Hampton)
MS: Life with MS
Parkinson’s: Out-thinking Parkinson’s (Gary Sharpe & polyvagal theory)
Rheumatoid Arthritis/Disease: RA Warrior
Scoliosis and Trauma: MindKindMom (Cheryl’s recovery from Scoliosis and trauma perspectives)
Secrets mailed Anonymously: PostSecret
Sexual Abuse: Trauma Recovery University
Trauma Pages (resource site)
Treatment: Psychotherapy Tips To Heal Trauma: Dr Arielle Schwartz (polyvagal theory+)
Posts, Online Courses & Education
The nervous system in chronic illness (my blog post ANS Essential Guide)
The nervous system in chronic fatigue syndrome (my blog post on the science and why it’s not psychological)
Steve Hoskinson at Organic Intelligence (courses and training)
Jessica Shaffer at Nervous System Reset
Andrew Cook’s exercises for Nervous System Support: get PDF for Positive Body Awareness (also known as an “Orienting Exercise” in Somatic Experiencing)
It’s very informative. Keep it up. . This information will definitely be going to help in the long run
Thanks Rachna!!
Thanks, Veronique, this feels so good. Particularly since I have been trying to show that scoliosis is the outcome of ACEs which is still not acceptable.
Cheryl – I think you are so on the right track! I believe that most chronic health conditions (of all kinds) are due to interactions between genes and the environment of experience, which as you know is being shown very clearly by the science now. There just simply hasn’t been the money or time or awareness yet to research them all – so glad you have your online presence to speak for scoliosis so clearly.
Hi Cheryl,
I just saw the movie Molly’s Game. She had surgery for scoliosis when she was 12 and had a “type A hard driving father” as she calls him. I thought it a fascinating reflection on scoliosis and wanted to mention it given all you write about it and your link to ACEs. Here’s an NPR article on the movie that briefly mentions it for you and anyone else interested.
You are so interesting! I do not suppose I’ve truly read through a single thing like this before. So wonderful to find. Somebody with a few unique thoughts on this topic. Seriously.. Many thanks for starting this up.
Thanks for the positive comments Alice!!
Hi,
I’ve just come across your blog and have also found that the trauma recovery work I did with a Somatic Experiencing therapist helped me profoundly with my CFS/FM. Something else that has made a big difference is working the Twelve Steps of recovery though the program at Chronic Pain Anonymous, which is a fellowship for people who live with chronic pain and chronic illness. Pain was never a big issue for me, but the CFS symptoms were debilitating and my life looks quite different as a result of the trauma healing and the healing from working a spiritual program. I look forward to learning more about the work you do.
Emma
Hi Emma,
Thanks for sharing what has worked for you, including the 12 Steps for pain recovery program. It’s amazing how different our lives can look, isn’t it? My own has changed in ways I could have never even imagined and so much for the better. The spiritual piece is a big one. Welcome :-)
Thank you! It is wonderful how there are many choices for healing and the internet makes it easy to find new resources. If you are interested check out CPA at chronicpainanonymous.org Another resource is Mindful Self Compassion. There is even one website that focuses on trauma and self-compassion. The more I learn the better the quality of my life living with a chronic illness.
Best,
Emma
I couldn’t agree with you more, Emma – Once we understand more about these risk factors it opens up a whole world of options. Thanks for sharing these resources – I edited your comment to include links to both sites :-)
Greetings,
Thank you for sharing your blog.
https://www.renuhealthnow.com/
Thank You.
Thank you and I wish you well in your work too.